Tag Archives: patient

Being (a) Patient: Progress Isn’t Always Pretty!

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Five days from now,  I will go to my uber-talented prosthodontic clinician who will once again rebuild my much abused flipper.

What’s a flipper?  A flipper is a dental prosthesis that simulates teeth that are missing.  It’s used by damaged people like me and pint-sized beauty queens  who are in between their baby teeth and adult teeth.

I have not been able to wear my flipper for over a month, due to a complication with the augmentation bone graft, I had done in  September to restore the bone I lost when I fell.  Originally, my periodontist cut my flipper back to keep it away from the graft.  However, it was still cutting off the circulation to my gum.  So, I had to lose it to ensure the best possible result.

I have mixed feelings about wearing it again.  Physically, I am more comfortable without it.  It tastes like plastic.  It presses against my gum and hard palate all day.  It makes me gag.  It make me cough.  It makes me angry.  It reminds me to hold the handrail on stairs.  Emotionally though, it makes me feel safe.  It makes me feel like maybe people will think I just have adult braces.  It makes me feel less… vulnerable.  I don’t like to feel vulnerable.

I keep my top lip pulled down when talking to people.  When I laugh or even smile, my hand flies up to cover the gap left behind by my two missing front teeth.  I’ve realized since this has happened that a toothy grin can compensate for more than just physical insecurities though.  When you can’t flash a smile, tilt your head and toss your hair, your personality flaws become glaringly obvious.  When it comes to conversation, I’m not an artist.

I think, perhaps, writers are writers because it gives us a chance to express what we would have liked to have said in any given moment, if only we could have thought of it at the time.  If only…

I am determined to learn from this experience and be better for having gone through it.  I don’t know exactly what that looks like yet.  Habits form over decades; not all at once.  Change doesn’t happen all at once.  I hope that by the time this is all over that I can look back and see that I have taken one step at a time in the right direction.

Love and Many blessings to All,

Cynthia

justdragonfly

Being (a) Patient: A Moment of Gratitude

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When you have been through as many dental consults as I have (six periodontal, four prosthodontic and two orthodontic) and several months of procedures with an oral surgeon, you can get pretty tired of going to dentists’ offices, especially when the actual dental reconstruction work hasn’t started yet.  It begins to feel endless before you even begin.  Then the blessing comes.

I had to have my broken bicuspid bonded in order to be able to have a brace put on it.  The entire front was missing. I am going to be in braces for over a year. So my prostho didn’t want to put a temporary crown on it for that long.  When he said he was going to bond it, I figured it would like a patch, similar to the blob of bonding material my oral surgeon put behind another tooth to save it.

So, you can imagine my surprise when he molded it to look like an actual tooth…  not just a tooth either, MY TOOTH.  I could barely talk when his assistant put the before and after photo up on the monitor. It looked like it had never been broken… like nothing at all had happened to it.  It looked perfect!

I know it’s just one tooth and a temporary solution at that.  I still have a looooooong way to go in this dental reconstruction but it’s hard to express how it good it felt to have that first little step be so beautiful!  I felt a little bit more like myself than I have in a long time.  Even with my appliance in, I felt uncomfortable smiling wide because I knew my broken tooth would still show.  Thursday night, I wore the widest, brightest (had a cleaning too) smile that I have had in almost six months when I showed his work to my family.

I knew the prosthodontist I had chosen was an artist.  …I can always spot one a mile away.  I wasn’t worried about whether he could do the work but it is awfully nice to see proof that I was right in my own mouth!

What was your big moment of gratitude this week?

Love and blessings to all.

Cynthia

 

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justdragonfly

Being (a) Patient: The Long and Bumpy Road

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When you have an injury or illness that requires a long plan of treatment, you’re probably going to hit the wall more than once.  At least that’s been my experience thus far.

I have been having one of those weeks where I was starting to feel like the 10 steps I went forward in May to get my smile back…well, I fell back seven.  When you have 4 doctors (or in my case dentists: a periodontist, a prosthodontist, an orthodontist and an oral surgeon,) they aren’t always going to agree on everything.  I also found out it would be a miracle if I don’t end up with any pink porcelain (which is used to simulate gum tissue when there has been bone and/or gum tissue loss.)  And some of the people who are closest to me are sick of hearing about my teeth after four plus months and think I should stop seeking out the holy grail of treatment plans and just get on with the fuckin’ work already.

Can’t really blame ‘em there.  I am sick of it too.  I would love to just get on with the treatment already but I am also terrified.  I have felt like I have been putting a puzzle together in the dark since I fell.  Whenever I think I have all the pieces together, a light flashes on just long enough to reveal that something isn’t quite right yet.

I have made progress for sure.  I managed to avoid the plates and screws that the residents at the hospital wanted to put in my jaw.  I found a great oral surgeon who set my jaw and saved the other three teeth; they wanted to pull in the hospital.  I nixed the treatment plan that would have left me an 8 tooth bridge from upper premolar to premolar, as well as, the douche-bag perio who said it was my only option.  Thankfully, I’ve found a skilled team who can deliver on keeping me in all separate teeth.

So, what’s the problem then, right?  Four millimeters is the problem… four fuckin’ millimeters of vertical bone loss above my missing central incisor (or right front tooth to you and me.)  Between my body growing it and the bone graft(s), I need to gain 4mm (and have plenty of gum tissue) in order to avoid pink porcelain.  Is pink porcelain that big a deal?  Well, when you have a high smile line or a somewhat gummy smile like I do, it’s going to show.  I keep flashing on an image of a youngish Wayne Gretzky with his pink-topped crowns.  I couldn’t figure out why his upper gum looked like it had a squiggly dark line running through it at the time.  Now, I know it was pink porcelain.

My prosthodontist is an artist and I am sure even if pink porcelain is required that I won’t look like an ice hockey-player by the time he is done but, you know, I also will do everything in my power to make sure I gain those four fucking millimeters!

What experiences have you had as a patient?  How did you overcome them?  Is there anything you wish you had done differently looking back now?

Love and blessings to all,

Cynthia

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justdragonfly

Being (a) Patient: Holding Out for a Hero

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Anyone who knows me well, knows I have never been shy about saying that western allopathic medicine is good for putting people back together when they are broken, and for acute care when someone’s life is in danger, but when it comes to treating chronic conditions and disease…not so much.  I believe that if you are looking for someone to take care of your health, start by looking in a mirror.

I know that I am responsible for my own health.  I have studied nutrition, yoga and various wellness practices.  I walk regularly.  I meditate.  I eat a vegetarian whole foods diet.  Yada yada yada…When it comes to health and wellness, I was on it… and then I got broken.

After this accident, I was completely overwhelmed by how my mouth was going to be put back together.  I knew in my bones that the plan the hospital had come up with, wasn’t the way to go.  So, when I found the doctor who fixed my upper jaw without screws or plates, I was elated and tried to dump the responsibility for the rest of my care on him.  I asked him to put together a team for me to do my dental reconstruction.

Like most doctors would, he complied by finding specialists who he liked and were located in my geographic area.  The only problem was they weren’t right for my particular case.  The periodontist he referred me to had the chair-side manner of an icy, wet blanket.  (I suspect he was part reptile…)  He gave me only one option for a course of treatment that was totally unacceptable to me.  Shortly, before I left his office, he looked at the photos of my smile before the fall and coldly said, “You’re never going to look like that again.”

I left his office enraged and called the doctor who had referred me to this monster.  I won’t bore you with the dialogue but it boiled down to what the Hell was he thinking sending me to this douche bag? (of course, only in more polite terminology.)  After some back and forth, he said “You have to get a consensus.  You’re going to need to go do consults with several different specialists until you find a doctor you like and then pick the plan you like the best.”

He was right.  The punch in the gut I got that afternoon turned into a kick in the ass.  I realized I was being a baby.  I never really had dental work before or orthodontics ever.  My teeth were always straight and healthy.   Aside from a few fillings when I was a teen and getting my wisdom teeth pulled, I only went to the dentist for cleanings.  I let my fear and ignorance turn me into a helpless victim.  I wanted someone else to fix this problem and I just wanted to show up to wherever it was being performed.  I just wanted to wake up when it was all done with a beautiful smile again.  Reality called and reminded me that I am responsible for my own care.

So, I started doing my own research on NY periodontists and prosthodontists.  Then I began the expensive time-consuming process of being examined and doing initial consults with these fellows.  I have learned a lot about my condition in the past few weeks and the various ways to treat it.  I haven’t picked one yet but I have it narrowed down to three perios.  I still have to hear the third plan.  So far, I am happy to report that, they are much more acceptable than the initial prognosis that I was given in that first reptilian consult.  Also, the specialists I am considering working with now, all have experience working with people who were injured in accidents, as well as a good deal more compassion for what I have been through.  They actually all like the fact that I have been consulting with other people and have been becoming educated about the various processes to reconstruct my gum and fix my teeth.

The bottom line is we are all responsible for our own bodies, regardless of what our condition is and how much help we need to fix it.  Take your time, find the right people and the right course of action for you.  Learn as much as you can and be an active participant in your own treatment plan.  Don’t just be a patient, be your own hero!

Love and blessings to all,

Cynthia

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